C12252: A Web Tool for Patient Report Outcomes (PRO) Data Collection in Clinical PracticeNovelty:
The invention is a prototype website to collect PROs in outpatient clinical oncology and link the data with the Electronic Medical Record (EMR). It can indicate patients problems, provide recommendations, and connect the result with electronic health records.
Value Proposition:
Preliminary reports from clinicians and patients suggest that a website to collect PROs and link them with the EMR could help improve the quality of cancer care. Therefore, there is a need to centralize the PRO data and report them to clinicians in real-time to provide aids in the management of individual patients using PRO questionnaires. Advantages include:
• Provides explanations to patients and physicians what scores mean and what they can do to improve
• Generates an automatic page or email if responses requiring immediate attention are reported
• Links PRO data results to Johns Hopkins electronic patient record (EPR)
Technical Details:
Johns Hopkins researchers have developed a web tool that allows clinicians to assign PRO questionnaires to patients at predefined intervals. Patients will receive an email reminder to complete the questionnaire with a link to the website. The results from patient's current and previous questionnaires are displayed in the graphical format. Scores that are poor in absolute terms or indicating a significant worsening from the previous PRO are highlighted to alert clinicians. In addition, patients can use Free-text boxes to report the issue they are most interested in discussing with their clinicians and any other feedback.
Looking for Partners:
To commercialize the technology as an integrated PRO date collection system to
PRO providers.
Stage of Development:
Prototype
Data Availability:
Under CDA/NDA, further pilot-testing will evaluate the use, usefulness, and acceptability of PatientViewpoint
Publications/Associated Cases:
1. Qual Life Res. 2009 Sep;18(7):793-800
2. J Support Oncol. 2012 Jul-Aug;10(4):143-8
3. Psychooncology. 2013 Apr;22(4):895-901
